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Cystic Fibrosis
Wellington Branch
 
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Other CF Support Services
 

Counselling/ Support
Skylight is a non-profit organisation helping children and young people, and their families, who have been impacted significantly by change, loss and grief.
Contact:

  • Call free on 0800 299 100
  • email info@skylight-trust.org.nz
  • www.skylight.org.nz
 
Hospital Social Workers

Hospital Social Workers can help with Disability Allowance claims and Carer Support. They can be reached via hospital switchboard and specify if you require paediatric rather than adult service.

Telephone: (04) 385 5999

Alternatively, contact Sally Carron, National CF Fieldworker for advice.

 

Carer Support
Carer support is non-means tested and support hours are allocated on a case by case basis.

If you wish to apply for carer support it is highly recommended that you talk to a Paediatric Social Worker at Wellington Hospital first. The team of 3 people is experienced in helping families apply for this and can help guide you in applying to the agency to visit you and complete an assessment.

In recent years CF Parents applying directly to agencies for Carer Support hours have had little success.

If you do need to contact the DHB's carer support agencies directly, details are as follows:

CCDHB uses the following agency:
Service Facilitator
All of Life Team Capital Support "Links for Living"
Telephone: (04) 237 2570

HVDHB uses:
Life Unlimited Charitable Trust
Hutt Valley
PO Box 33-145
5 Bouverie Street
Petone
Lower Hutt
Telephone: (04) 569 3102/ Freephone: 0800 008 011
Fax:(04) 569 3250
http://www.life.nzl.org

 

Ebos Healthcare
Ebos Healthcare are the providers of E Flow bebulisers and parts and the Eflow representative, Lesley Peake can be contacted at their Customer Care Centre:

  • Freephone: 0800 105 501

Lesley will take orders, and answer questions about replacement parts and cleaning etc.

If you can't get hold of her via the freephone number, she is happy for people to call her direct on her mobile:

  • Telephone: 021 326 773

Please note, some parts are held in stock at the National Office and available for purchase, so it's worth checking with them too.

     
Wellington Branch email: contact@cfwellington.org.nz